STEPS TO DEVELOP A CHI PACC® PROGRAM
With leadership from Senator Bennett (R-UT), Congressmen Murtha (D-PA), Congressman Moran (D-VA) and a growing number of supporters, U.S. Congressional appropriations have enabled CHI, with technical assistance from CMS, to demonstrate the CHI PACC® model in Colorado, Florida, Kentucky, New England, New York, Utah, Virginia and the Department of Defense.
Moreover, CHI PACC® is expanding to additional states. The experience of these programs has demonstrated the CHI PACC® model's flexibility through the diverse approaches to implementation. Strategies used in both pre-implementation stages and implementation stages are shown below.
Pre-Implementation Strategies
- Conduct a needs assessment
- Establish an Advisory Council representing various agencies and potential providers
- Develop a set of procedural guidelines for the Advisory Council
- Structure a preliminary time line for the project
- Convene focus groups of parents of children who have died of chronic illness
- Define the Target Population
Implementation Strategies
- Develop the scope of services for free and/or sliding-scale fee services
- Determine the initially served population by geography or by characteristics of underlying conditions
- Identify sources of funding that include insurers and Title V agencies serving children with special medical needs
- Develop strategies to ensure that each family of a child diagnosed with a qualifying condition receives the opportunity to participate in the CHI PACC® program
- Prepare a film to assist in outreach and provider education.
- Partner with other agencies to coordinate services and community resources.
- Educate and train pediatric providers.
- Develop requirements for inclusion of providers in the CHI PACC® program and expand the service area for the program through addition of new providers.
- Allow families to hire a family member or other trusted person to provide respite care when appropriate.
Evaluation
Evaluation of the program will include examining cost-effectiveness, quality of life factors, provider satisfaction measures, appropriateness and completeness of CHI PACC® standards, and other appropriate parameters.
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