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| CARE FOR CHILDREN |
- Child often isolated
- Fragmented, disjointed services with gaps
- Access difficulties
- Focus is acute care
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- Child & Family as unit of care
- Care management in continuum of comprehensive services
- 24-hour availability to speed access
- Focus is keeping child in community
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| CARE FOR FAMILIES |
- Family on periphery
- Family in crisis
- Family with excruciating decisions
- Workplace disruption
- Social cost
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- Family as unit of care
- Ongoing support for family, including siblings
- Family not alone at difficult times
- Supportive services to reduce disruption
- Services to reduce costs to community, e.g. reduction of adolescents on alcohol and drugs, reduction of illnesses developing in other
family members-due to unresolved grief
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| USE OF RESOURCES |
- Crisis-driven utilization
- Hospitalizations because no alternatives
- Squeezes pennies to lose dollars
- Qualifications for reimbursement block access creating crisis
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- Macro management reduces crises and insures appropriate utilization
- Services in community reduce hospitalizations
- Improved use of resources gets more for same amount
- Access to services when needed reduces more costly utilizations
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| SATISFACTION |
- Families burdened with guilt and grief
- Families forced to make decision what
can be reimbursed, not what's needed
Children receive inadequate pain control and symptom management
- Dying an event surrounded by confusion, distress, denial, guilt
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- Families receive counseling and support
- Families make decisions on what's best for the child
- Children are kept comfortable as illness progresses
- End of life prepared for and supported
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