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CHI PACC® will offer and manage all health care, medical care, social services and support services needed by families to care for children diagnosed with life-threatening and potentially life-limiting conditions, from the time of diagnosis, with hope for cure, through end of life care, and support for their families, including bereavement care.
CHI PACC® Program Components
A CHI PACC® program can be established by virtually any entity (hospice, palliative care, home care, children's hospital, etc.) willing to and capable of providing the services outlined below, either through its facility or under arrangement with complementary/ancillary providers. CHI has articulated CHI PACC® Standards of Care to guide providers and ensure consistency in services and quality control.
A CHI PACC® program provides a continuum of care for children and their families from the time that a child is diagnosed with a life-threatening condition, with hope for a cure, through the bereavement process, if cure is not attained. The core of success for a CHI PACC® program is that it:
Incorporates families as participants and stakeholders in the child's care
Integrates traditional home care and hospice/palliative services
Integrates pediatric acute care with community-based care
Provides access to hospice/palliative care to address symptoms from the beginning of care and to integrate care with disease management
Fills the current gaps in care for the child and family to enable children and their families/caregivers to remain in the community
Provides a longitudinal view of the child and family/caregivers across the disease trajectory and bereavement follow-up
A CHI PACC® program provides essential services 24 hours a day, 7 days a week. The program design includes the following elements:
- home care
- outpatient care
- community-based care
- respite care
- social and supportive services
- acute care
- bereavement follow-up services
- pediatric palliative care physician(s)
- pediatric physician specialists
- nurses
- social workers
- chaplains
- pediatric therapist specialists
- psychologists
- allied therapists, e.g. PT, OT, etc.
- home health aides/home makers
- volunteers
- laboratories
- pharmaceuticals
- durable medical equipment
- communication supports, e.g. non-English language and telemedicine
- medical supplies
- complementary therapies, e.g. massage, guided imagery, etc.
- "high tech" home care services
- anything else necessary to sustain presence in the community
- day care
- in-house/community-based respite care
- caregiver support for traditional and non-traditional families
- family support for long distance caregiving needs
- community services to prevent unnecessary institutionalization and enhance quality of life
- care for siblings
- coordination of schools for school-age children and siblings
- on-call system
Contact CHI for more information. Additionally, CHI offers the CHI PACC® Implementation Manual for step-by-step information on developing a CHI PACC® program.
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