ChiPACC Waivers are provided to states by the Centers for Medicare and Medicaid Services (CMS) “to waive current regulations” to allow for ChiPACC services which go beyond hospice/palliative care regulations.
ChiPACC waiver programs in five (5) states have provided expanded services to over 5,000 children and families through 2012.
Two of the ChiPACC Waiver states – Colorado and California – demonstrate the cost savings of the ChiPACC program; saving between $1,700 and $1,800 per child per month, over $20,000. per child per year.
STATEMENT OF NEED
Currently, 1.2 Million seriously ill children per year in the US could benefit from all-inclusive coordinated care services.
Children with chronic illness and complex health care needs are living longer and require creative approaches to delivery care coordination and hospice and palliative care services (HHS)
10.2 Million Children (13.9% of US children ages 0 – 17) have special health care needs. This number is increasing slightly every year. (HHS).
- Under the Patient Protection and Affordable Care Act, hospice/palliative and curative care can be provided concurrently to children enrolled in Medicaid or the Children’s Health Insurance Program (CHIP). Thanks to the leadership of CHI and others in the field, this practice is being implemented in an increasing number of institutions nationwide. Thus parents no longer have to choose between hospice/palliative care and hope for a cure in the last six months of life. It is important that this type of support is available from the time of diagnosis of a life threatening condition in a child.
- Adult hospice programs are generally not equipped, and their staff is not trained, to address the unique needs of the children and their families.
- The present system of pediatric care can lead to high-cost, crisis-driven access to medical care and excessive reliance on institutional settings. This is often, accompanied by a social cost in the form of disruption in family life, isolation, loss, or reduction of employment, and removal of the child from the community.
CHI and ChiPACC are addressing this urgent need! (LINK ChiPACC Program & ChiPACC Bill)
ChiPACC Model: Overcoming Barriers
- ChiPACC offers a comprehensive and cost effective continuum of care for children with life-threatening conditions and their families from the time of diagnosis, with hope for cure, through bereavement follow-up if cure is not attained.
- Families of children with life-threatening conditions are not forced to choose between curative care and hospice/palliative care, but instead the ChiPACC model allows palliative care to be offered along with curative treatment from the time of diagnosis.
- The ChiPACC model provides early and continual intervention and case management functions to prepare families and health care provider to promote appropriate support for the seriously ill child.
- With respite care, provided by the ChiPACC model, parents are able to continue functioning in the community.
ChiPACC is broader than traditional hospice/palliative care models in that the ChiPACC program provides a continuum of care for children and their families from time of diagnosis with hope for cure, and through bereavement if cure is not attained. ChiPACC provides care in the most appropriate setting based on family choice, hospital, home, hospice or other appropriate facility, rather than the funding stream.
Coordinated, blended care for critically ill children enhances quality of life for the patient and their family and produces significant medical cost savings.